Who is Nathalie Traller?
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Nathalie Traller (15) has been diagnosed with Stage IV ASPS – (Alveolar Soft Part Sarcoma), a rare pediatric sarcoma without known chemotherapy.
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Nathalie Traller (15) has been diagnosed with Stage IV ASPS – (Alveolar Soft Part Sarcoma), a rare pediatric sarcoma without known chemotherapy.
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Nathalie Traller (15) has been diagnosed with Stage IV ASPS – (Alveolar Soft Part Sarcoma), a rare pediatric sarcoma without known chemotherapy.
Why we ask you to join us
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Since Nathalie’s diagnosis in April 2012, her parents have explored each clinical trial and treatment option available. She has valiantly come back from ten surgeries and continues to surprise her doctors on the east and west coast. Knowing last September that the cancer was continuing to spread, sarcoma experts around the country pointed Nathalie’s family towards emerging anti-PD1 immunotherapy. Because of age, she was unable to participate in at least six recruiting clinical trials she otherwise meets criteria for.

A successful nine-month campaign to bring her access has meant a chance for Nathalie to try what our systems denied her! We are so grateful to those who have joined us. Through this journey we have learned much about what needs to change to truly make a difference for childhood cancer. We ask you to join us in making a lasting difference for ALL those young people fight cancer.
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Since Nathalie’s diagnosis in April 2012, her parents have explored each clinical trial and treatment option available. She has valiantly come back from eight surgeries and continues to surprise her doctors on the east and west coast. Knowing last September that the cancer was continuing to spread, sarcoma experts around the country pointed Nathalie’s family towards emerging anti-PD1 immunotherapy. Because of age, she is unable to participate in at least six recruiting clinical trials she otherwise meets criteria for. Her oncologist requested Compassionate Use of anti-PDL1 immunotherapy trial meds from Genentech. Further requests to Merck and Bristol Myers Squibb for their anti-PD1 compounds have also been denied. Now, with the cancer unchallenged and spreading, her family is calling out for help in sharing her urgent story with the public.
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Since Nathalie’s diagnosis in April 2012, her parents have explored each clinical trial and treatment option available. She has valiantly come back from eight surgeries and continues to surprise her doctors on the east and west coast. Knowing last September that the cancer was continuing to spread, sarcoma experts around the country pointed Nathalie’s family towards emerging anti-PD1 immunotherapy. Because of age, she is unable to participate in at least six recruiting clinical trials she otherwise meets criteria for. Her oncologist requested Compassionate Use of anti-PDL1 immunotherapy trial meds from Genentech. Further requests to Merck and Bristol Myers Squibb for their anti-PD1 compounds have also been denied. Now, with the cancer unchallenged and spreading, her family is calling out for help in sharing her urgent story with the public.
How You Can Help!
Etiquette Guidelines:

“As passionate as we are in encouraging new solutions for Nathalie, we respect the real people involved in developing and regulating new hope-giving medicines. Cancer is the bad guy, and we need partners, not enemies to win.”
– The Traller Family
1. Like 4Nathalie on Facebook – When you see a post, Like, Comment and Share as much as possible
Facebook's complex newsfeed algorithm decides what is worthy based on activity, time, your connection to friends and so on. Interestingly "commenting" scores high. So please like and comment every time you see a post or update. You can even like and comment your own post. You can always just comment #kickASPS!
2. Follow @4Nathalie
3. Write a letter to call our government to action.
You can cut and paste the letter below or write your own letter to Congresswoman Susan Bonamici, Senator Ron Wyden and Senator Jeff Merkley  
Dear _____________,

In support of Nathalie Traller and her family, I'm writing to ask for your help.

Nathalie is a 15 year-old girl from Beaverton, Oregon who is battling for her life. She was diagnosed with a very rare form of cancer (Alveolar Soft Part Sarcoma) two years ago. Her family has been joined by thousands (including public servants such as yourselves) who have advocated to help her access therapies often unavailable to pediatric patients. Along the way, her family has learned just how limited the fight against children’s cancer is.

There are no market forces driving research and thus many pediatric cancers are using 30-year old chemotherapies.

An increased share of NCI research funding dedicated to childhood cancers would make a powerful difference. Legislation to encourage pharmaceutical development of new and novel pediatric cancer therapies through incentives could bring hope. It’s time to cut the red tape originally designed to protect children which instead makes creating clinical trial for ages below 18 unpalatable for drug companies. Having no treatments is not protecting our children - it is shameful and dooms them to pain and suffering while we bask in the advances of cancers that impact those with stronger voices and deeper wallets. Legislation that asks clinical trial age limits to be based in science and justified if receiving government funding will remove the artificial ceiling that keeps out our youth.

Anything you can do to help problem-solve, create new pathways for research, partnerships with pharmaceutical companies, and remove roadblocks to this fight against childhood cancer will be greatly appreciated.

Sincerely,


Congresswoman Suzanne Bonamici:


https://bonamici.house.gov/contact-me

Washington, D.C. Office
439 Cannon HOB
Washington, DC 20515
Phone: (202) 225-0855
Fax: (202) 225-9497

Oregon Office
12725 SW Millikan Way, Suite 220
Beaverton, OR 97005
Phone: (503) 469-6010
Fax: (503) 469-6018
Toll Free: (800) 422-4003
Senator Ron Wyden:


http://www.wyden.senate.gov/contact/

Washington, D.C. Office
221 Dirksen Senate Office Bldg.
Washington, D.C., 20510
tel (202) 224-5244
fax (202) 228-2717

Portland
911 NE 11th Ave., Suite 630
Portland, OR, 97232
tel (503) 326-7525

Salem
707 13th St., SE Suite 285
Salem, OR, 97301
tel (503) 589-4555
Senator Jeff Merkley:


http://www.merkley.senate.gov/contact/

Washington D.C. Office
313 Hart Senate Office Building
Washington, D.C., 20510
Phone:
(202) 224-3753
Fax:
(202) 228-3997

Portland Office
121 SW Salmon Street, Suite 1400
Portland, OR, 97204
Phone:
(503) 326-3386
Fax:
(503) 326-2900

Salem Office
495 State St., Suite 330
Salem, OR, 97301
Phone:
(503) 362-8102
4. Visit Nathalie's Blog at kickasps.wordpress.com/
5. Please continue to pray for Nathalie and her family.
Thank you for your help.  We need it today.  Please invite others to support 4Nathalie as we walk forward in hope of compassionate use of PDL1 and PD1.